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Bianca Brouwers and her daughters Leah, Emma and Lexi have a rare condition called Marfan syndrome which makes their limbs long and they dwarf their brother With a combined height of almost 30 FEET, a mother and her three daughters are believed to be one of Britain’s tallest families.
Bianca Brouwers and her daughters Leah, 12, Emma, six, and Lexi, four, all have Marfan syndrome, a rare condition that leads to abnormally long and slender limbs.
Her son Remy, 15, is the only member of the family without the genetic disorder.
“Us girls dwarf him,” Bianca said. “At 6ft 3in, I’m the tallest of the bunch.
“Leah is not even a teenager yet but she’s already 5ft 9”.
“Emma is only young, but she towers over all her classmates at 4ft 2” and Lexi wears clothes for kids twice her age.”
According to the NHS, Marfan syndrome affects around 1 in every 3,000 people.
The condition is incurable, so treatment focuses more on managing symptoms, which include loose, flexible joints and, occasionally, a curved spine.
Bianca’s sister Natascha, 32, and niece Michaella, 15, also have the condition, both standing at more than 6ft.
But when Lexi was first born she was noticeably smaller than the other Brouwers children.
“Leah was a healthy 8lb 1oz and Emma tipped the scales at 11lb 1oz, so when Lexi arrived weighing just 6lb 9oz, she seemed like a china doll in comparison to the big, bouncing babies I was used to,” said Bianca, 33.Two weeks after she was born, Lexi was diagnosed with Cri du Chat, also known as 5p syndrome, after the 5p size chromosome that is missing with those with the condition.
Typically, infants with Cri du Chat are small in size and emit high-pitched cat-like cries.
The condition has also been linked to developmental delays and distinctive facial features, including a small jaw, wide-spaced eyes and low-set ears.
But upon noticing Lexi’s slender toes and fingers, medics also diagnosed her with Marfan syndrome, like her sisters and mother.
“As far as we know, she’s the only girl in the world with both conditions,” said Bianca.
“We had no idea which one would take hold – would she stay small, or grow to a giant like the rest of the females in the family.”